What is PKU gel?
PKU gel is a concentrated, powdered medical food that when mixed with water is easily made to a low volume, smooth semi-solid consistency. One packet contains the equivalent of 10 grams of protein, and all the vitamins and minerals that are needed to help meet your child’s requirements.
Who is PKU gel for?
PKU gel is for children with PKU from 1 year of age. PKU gel can be taken up until your child is 10 years old, however your dietitian will advise when is best for them to switch over to their next protein substitute. This is usually around the age they start school.
Why does my dietitian want my child to try PKU gel?
Your dietitian will begin to incorporate PKU gel into your child’s diet when the child begins weening onto solid foods. PKU gel is a second stage medical food that will be used alongside their phenylalanine-free infant formula. PKU gel has been specifically developed to make this weaning process as simple and stress free as possible.
The following video helps explain weaning an infant with PKU, and the use of PKU gel, in a little more detail.
How much PKU gel does my child need?
The amount of PKU gel your child needs will depend on a variety of factors including their age and weight. Initially, they may only need a very small amount which will increase as they grow. Your dietitian will advise exactly how much PKU gel your child will need each day.
How do I make PKU gel?
Making PKU gel is easy!
- Empty the contents of the packet into a cup with lid.
- Add 30ml of cold water.
- Secure the lid and shake well until powder is completely dissolved.
- Leave to stand for two minutes for a smooth gel to form.
- Consume with a spoon.
PKU gel can be mixed to a drink with a desired volume of water.
Remember water or another permitted drink should be taken straight after PKU gel.
What flavor is PKU gel?
PKU gel is available in unflavored, orange, and raspberry flavors.
Click here to view our PKU gel tips.
PKU Food Balance Game
PKU Food Balance Game – An interactive game to engage children with PKU in learning about food choices on phenylalanine (Phe) or protein restricted diets.
PKU gel is a medical food intended for use under medical supervision.