What is PKU gel?
PKU gel is a concentrated, powdered protein substitute which when mixed with water is easily made to a low volume, smooth semi-solid consistency. One sachet contains the equivalent of 10 grams of protein, and also all the vitamins and minerals that are needed to help meet your child’s requirements.
Who is PKU gel for?
PKU gel is for children with PKU from 6 months of age. PKU gel can be taken up until your child is 10 years old, however your dietitian will advise when is best for them to switch over to their next protein substitute. This is usually around the age they start school.
Why does my dietitian want my child to try PKU gel?
When your child is around 6 months of age your dietitian will help you start the process of introducing solid foods into your child’s diet, often called weaning. At this time your child will need to start introducing a second stage protein substitute alongside their phenylalanine-free infant formula that they will be taking from a bottle. PKU gel is a second stage protein substitute that has been specifically developed to make this weaning process as simple and stress free as possible.
The following video helps explain weaning an infant with PKU, and the use of PKU gel, in a little more detail.
How much PKU gel does my child need?
The amount of PKU gel your child needs will depend on a variety of factors including their age and weight. Initially, they may only need a very small amount which will increase as they grow. Your dietitian will advise exactly how much PKU gel your child will need each day.
How do I make PKU gel?
Making PKU gel is easy! Simply…
- Empty the contents of the sachet in to the beaker provided.*
Add 30ml of cold water.
- Secure the lid on the beaker and shake well for 10 seconds.
- Leave to stand for two minutes for a smooth gel to form.
Consume with a spoon.
- Remember water or another permitted drink should be taken straight after PKU gel
The above video includes a demonstration of how to make PKU gel.
*Don’t worry if you haven’t got a beaker yet, you can ask your dietitian and they can request that one is sent to you. If you have a beaker with a lid at home you can use that too.
What flavour is PKU gel?
PKU gel is unflavoured and can be introduced when your child is 6 months old. For children aged 1 year and older PKU gel is also available in raspberry and orange flavours.
Sign up to the Vitafriends newsletter and like our Facebook page
Join the Vitafriends PKU Facebook page to get support from others with PKU.
Other useful bits of information.
Watch the following video to hear how other parents found the weaning process and their hints and tips on using PKU gel.
Click here to view our gel weaning guide which has lots of useful information about this stage in your child’s development. It also has some great hints and tips about how to introduce gel successfully from dietitians and other parents who have experienced weaning a child with PKU.
PKU gel is a food for special medical purpose, and should be used under medical supervision.